July 18, 2008 12:59 PM
CPAP for child with sensory issues - suggestions, anyone?
Hi Barbara,How are you doing? Hope you're having a fabulous summer.
I'm writing to see if any of your boys wear a cpap for sleep apnea. If so, do you have any advice on HOW to get a 4 year old with downs plus lots of sensory issues to wear one? Or, do you know anyone who's gone through this that i might talk to? Feeling a bit overwhelmed about this whole thing.
Thanks so much!
Jenny Fitzgerald
Posted in Disabilities | Permalink
Comments
Ok, here's my disclaimer: my child does not have Downs syndrome, but I do have a child with sensory issues. I also have friends with CPAPs, so I at least know what they are!
I would try to identify the source of the sensory issue. Is it having the straps on his head? Try a hat, a beret or stocking cap.
Is it the noise of the machine? White noise machines, fans, low-level music, etc. may work (I'm sure you've heard the advice.)
Is it the air blowing? There are some alternatives to the CPAP:
http://sleep-disorders.suite101.com/article.cfm/sleep_apnea_bipap_and_avs_machines
Brushing techniques may be helpful for tactile defensiveness, is he in OT? His therapist may be able to help.
Good luck, and know that you are never alone!
Posted by: Milehimama | July 19, 2008 12:14 AM
I don't have a Downs child, but my dh has worn a cpap for seven years. One thing I wanted to note is there are several different styles of cpap masks. Dh has used a couple of different kinds and the newer ones are much more comfortable. Here is a link to one that doesn't use any straps, just a mouthpiece and tubes to fit against the nostrils.
Dh's pump is not noisy at all.
Sorry I don't have more suggestions. The cpap has been a lifesaver for my dh. He was unable to drive before getting his and had suffered from extreme tiredness for years due to sleep apnea. I do hope and pray your child can get used to it.
Posted by: Sandy C. | July 20, 2008 10:18 AM
