October 16, 2010 7:02 AM
How a boy with Down syndrome changed my life
October is National Down Syndrome Awareness Month, in honor of which I want to share the song that reminds me most of Jonny and in the next entry something I wrote about him:
Your SongIt's a little bit funny this feeling inside
I'm not one of those who can easily hide
I don't have much money but boy if I did
I'd buy a big house where we both could liveIf I was a sculptor, but then again, no
Or a man who makes potions in a travelling show
I know it's not much but it's the best I can do
My gift is my song and this one's for youAnd you can tell everybody this is your song
It may be quite simple but now that it's done
I hope you don't mind
I hope you don't mind that I put down in words
How wonderful life is while you're in the worldI sat on the roof and kicked off the moss
Well a few of the verses well they've got me quite cross
But the sun's been quite kind while I wrote this song
It's for people like you that keep it turned onSo excuse me forgetting but these things I do
You see I've forgotten if they're green or they're blue
Anyway the thing is what I really mean
Yours are the sweetest eyes I've ever seenAnd you can tell everybody this is your song
It may be quite simple but now that it's done
I hope you don't mind
I hope you don't mind that I put down in words
How wonderful life is while you're in the world
Posted in Down syndrome, Family, Music, My life | Permalink
Comments
I love this song. It will forever remind me of my first love.Still the softest most tender kiss i have ever had.My first love would have been 40 this past august.He died on his 18th birthday.His eyes where hazel.
Posted by: lucyt | October 16, 2010 7:14 PM
Barbara,
I just found this book http://amzn.com/0933149816 "Gross Motor Skills in Children With Down Syndrome: A Guide for Parents and Professionals" by Patricia C. Winders
on amazon today and I LOVED what I found. I am really interested in child development anyways, but lately my husband has actually been showing interest in seriously considering adopting a baby with DS, so this caught my eye.
I'm sure you're already familiar with it, but I thought it was worth sharing.
Blessings!
Hannah
Posted by: Hannah | October 25, 2010 12:24 PM
