December 12, 2010 11:28 AM
Down syndrome survey: siblings and parents
Your input is needed for a research project on having a family member with Down syndrome. The survey takes less than 15 minutes and your name will be entered in a drawing for a $50 Amazon gift card.
Do you have a sibling with Down syndrome?You are invited to participate in a survey evaluating the effects on siblings from living with a brother or sister with Down syndrome. Siblings, ages 7 and older, of individuals diagnosed with Down syndrome and their parents are eligible to fill out a survey. We are conducting research to investigate how living with a sibling with Down syndrome positively and negatively influences the following:
- The sibling's personality
- The sibling's relationship with his or her sibling with Down syndrome
- The sibling's relationships with his or her parents
Parents are also invited to take the survey. Parents' responses will be compared to siblings' responses in order to examine how closely related parents' and siblings' perceptions are regarding the positive and negative impacts on the sibling from living with a brother or sister with Down syndrome.
The following surveys are available on the internet:
Sibling Survey, siblings under 18 years of age
Sibling Survey, siblings ages 18 and oldera href="http://www.surveymonkey.com/s/Downsyndromeparentsurvey">Parent Survey
By choosing to participate in this survey you will help researchers to better understand both the rewards and challenges that families experience as a result of having a child with Down syndrome. This research will also assist parents towards gaining insight into their well-child's experiences and feelings. Participants can register to be eligible for one of two $50 gift cards to www.amazon.com .
You may contact us directly if you would prefer a paper version. For additional information or to request a paper version of the survey, please contact Dr. Sarah Elsea at selsea@vcu.edu , or contact genetic counseling graduate student Lauren Bierema at bieremal@vcu.edu. You may also reach us at (804) 828-9632, ext. 123.
Thank you for your interest and support of Down syndrome research.
Photo above: My children Maddy and Jonny as a dance a couple years ago.
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